Data Acquisition and Processing

The Data Coordination Center (DCC) is the central hub of the IDCRP’s research efforts and provides high-quality, efficient data collection, processing, management, and access.
Led by Edward Parmelee, DCC Chief, the team includes data system designers, data managers, data entry staff, and SAS / Oracle programmers. The DCC team supports IDCRP research by providing Principal Investigators with expertise regarding the conceptualization, design, collection, management, cleaning, analysis, and publication of study data. These essential resources are provided for all research studies where the IDCRP is the primary data collector or repository. During the past year, 31 IDCRP studies were supported by the DCC, which includes 4 studies that entirely used data obtained from the Military Health System (MHS) Medical Data Repository.
In 2018, a browser-based electronic data capture system and workflow methodology for the design and execution of clinical research databases (i.e., REDCap) was employed for two IDCRP protocols: 1) Shiga Toxin-producing Escherichia coli (STEC) Outbreak Investigation in the EIDAR Research Area and 2) the Pragmatic Assessment of Influenza Vaccine Effectiveness in the DoD (PAIVED) trial in the ARI Research Area. Throughout 2019, the DCC team learned how to more effectively utilize the capabilities of REDCap, thereby decreasing resource needs for the start-up of new studies and increase programmatic capabilities.
During 2019, data continued to be acquired from the MHS Medical Data Repository to support research studies under the HIV and Trauma- Related Infections Research Areas, as well as collect data for retrospective cohorts (e.g., Chikungunya Virtual Cohort under EIDAR Research Area and HIV Virtual Cohort under the HIV Research Area). As the DCC team gains experience with the MHS Medical Data Repository, new ways to utilize this valuable resource are being examined.
In the upcoming year, the DCC will continue to build processes around the REDCap system with the goal of supporting interventional studies, as well as transferring long-term studies from the older, legacy systems into REDCap. The registry hosted by the IDCRP to store protected health information and personally identifiable information about subjects enrolled in IDCRP studies no longer meets the evolving needs of the Program. Thus, a new registry workflow based in the REDCap system to host this information is under development and is expected to be implemented in 2020. Lastly, as the IDCRP moves toward more interventional clinical studies, DCC processes and procedures will be comprehensively examined to assess compliance with federal (i.e., FDA) and international standards.
  •  Employed a new software tool called Remark OMR, which allows for the scanning of standard-bubble sheets used to collect information from a large group of subjects and/or in situations when electronic capture of data is not possible.​​​
  • ​Templates for standardized case report forms (CRFs) were developed and integrated into the REDCap system to be used by any IDCRP research study, increasing efficiency and reducing costs for system development.​​
  • National Institutes of Health toolkit for cognitive assessment was implemented as part of the ALLHANDs study in the HIV Research Area with the toolkit application downloaded and tested on iPads and distributed to relevant clinical sites for data collection.
  • Initiated the intensive process of transitioning IDCRP long-term studies from the currently used, legacy electronic data capture systems (e.g., ClinPlus) to the more efficient REDCap system.
IDCRP DCC Lead FedCASIC 2015 Workshops
The IDCRP Data Coordination Center lead four workshops at the FedCASIC 2015. The FedCASIC workshops are held annually, sponsored by the US Census Bureau and the US Bureau of Labor Statistics. CASIC is an acronym for Computer Aided Survey Information Collection, and these workshops are an opportunity for government employees and contractors to present and discuss new, novel, and effective methodologies for collection of data via computer. This year's theme is "Reengineering Survey Design Through Technological Innovation."
IDCRP presentations at FedCASIC 2015:





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